After this seminar you will 
     After this seminar you will 
                  be able to:
                  be able to:
     List the warning signs and symptoms of 
      List the warning signs and symptoms of 
     Rett Syndrome.
      Rett Syndrome.
     Describe how to cope with children with 
      Describe how to cope with children with 
     Rett Syndrome and what the most 
      Rett Syndrome and what the most 
     important aspects of treatment are.
      important aspects of treatment are.
     State how school dynamics can play a 
      State how school dynamics can play a 
     critical role in the development of children 
      critical role in the development of children 
     with Rett Syndrome.
      with Rett Syndrome.
                 GLOSSARY
                 GLOSSARY
    Rett Syndrome (RS): A neurodevelopmental disorder 
     Rett Syndrome (RS): A neurodevelopmental disorder 
     that is classified as a pervasive developmental disorder 
     that is classified as a pervasive developmental disorder 
    Pervasive Development Disorders (PDD): 
     Pervasive Development Disorders (PDD): 
     Refers to a group of five disorders characterized by delays in the 
     Refers to a group of five disorders characterized by delays in the 
     development of multiple basic functions including socialization 
     development of multiple basic functions including socialization 
     and communication.
     and communication.
    Apraxia: A neurological disorder characterized by loss of the 
              A neurological disorder characterized by loss of the 
     Apraxia: 
     ability to execute or carry out learned purposeful movements, 
     ability to execute or carry out learned purposeful movements, 
     despite having the desire and the physical ability to perform the 
     despite having the desire and the physical ability to perform the 
     movements.
     movements.
    Respite Care: The provision of short-term, temporary relief 
                   The provision of short-term, temporary relief 
     Respite Care: 
     to those who are caring for family members who might otherwise 
     to those who are caring for family members who might otherwise 
     require permanent placement in a facility outside the home.
     require permanent placement in a facility outside the home.
     What is diagnostic criteria 
     What is diagnostic criteria 
           for Rett Syndrome?
           for Rett Syndrome?
     Diagnostic Criteria for 299.80 
       Diagnostic Criteria for 299.80 
       Rett's Disorder
       Rett's Disorder
    All of the following: 
    All of the following: 
       apparently normal prenatal and 
         apparently normal prenatal and 
         perinatal development 
         perinatal development 
       apparently normal psychomotor 
         apparently normal psychomotor 
         development through the first 5 months 
         development through the first 5 months 
         after birth 
         after birth 
       normal head circumference at birth 
         normal head circumference at birth 
      (www.cdc.gov/ncbddd/autism/overview_diagnostic_criteria.htm)
      (www.cdc.gov/ncbddd/autism/overview_diagnostic_criteria.htm)
            Diagnostic Criteria 
            Diagnostic Criteria 
                    Continued…
                    Continued…
    Onset of all of the following after the period of 
     Onset of all of the following after the period of 
       normal development: 
       normal development: 
        deceleration of head growth between ages 5 and 48 
         deceleration of head growth between ages 5 and 48 
         months 
         months 
        loss of previously acquired purposeful hand skills 
         loss of previously acquired purposeful hand skills 
         between 5 and 30 months with the subsequent 
         between 5 and 30 months with the subsequent 
         development of stereotyped hand movements (e.g., 
         development of stereotyped hand movements (e.g., 
         hand-wringing or hand washing) 
         hand-wringing or hand washing) 
        loss of social engagement early in the course ( although 
         loss of social engagement early in the course ( although 
         often social interaction develops later) 
         often social interaction develops later) 
        appearance of poorly coordinated gait or trunk 
         appearance of poorly coordinated gait or trunk 
         movements 
         movements 
        severely impaired expressive and receptive language 
         severely impaired expressive and receptive language 
         development with severe psychomotor retardation 
         development with severe psychomotor retardation 
       (www.cdc.gov/ncbddd/autism/overview_diagnostic_criteria.htm)
       (www.cdc.gov/ncbddd/autism/overview_diagnostic_criteria.htm)
    RS is Associated with PDDs 
    RS is Associated with PDDs 
         or Autistic Spectrum 
         or Autistic Spectrum 
                   Disorder
                   Disorder
    Autism, also called autistic disorder, is 
     Autism, also called autistic disorder, is 
     a complex developmental disability 
     a complex developmental disability 
     that appears in early childhood, 
     that appears in early childhood, 
     usually before age 3. 
     usually before age 3. 
    Autism prevents children and 
     Autism prevents children and 
     adolescents from interacting normally 
     adolescents from interacting normally 
     with other people and affects almost 
     with other people and affects almost 
     every aspect of their social and 
     every aspect of their social and 
     psychological development. 
     psychological development.